Patient Stories

Marjorie’s Story: Cancer, Courage and the Power of Contribution
After being diagnosed with breast cancer in 2020, her journey didn’t stop at treatment. Marjorie chose to participate in research after her latest surgery.

Facing ALS: Dean’s Story
Dean, 60 from Brisbane is living with ALS, a rare, neurodegenerative condition that affects the nerve cells responsible for voluntary muscle movement. He shares his story and his experience in participating in MND clinical trials.

Merran’s Fight Against Ovarian Cancer
Merran Williams, a 71-year-old from Buderim, Queensland, is an inspiration, full of resilience and hope in the fight against ovarian cancer. Here she tells her story.

Ataia’s Battle with Tongue Cancer
In 2018, Ataia Elhage, a 48-year-old mother, found herself in a situation no one ever expects: battling tongue cancer. Now cancer free, Ataia advocates for personalised treatments and better outcomes for patients.

Tharuka’s Story: Living with Pulmonary Arterial Hypertension
Tharuka was diagnosed with Pulmonary Arterial Hypertension (PAH) at the age of 11. He shares with us his story - from growing up with PAH, to managing his condition and participating in clinical trials.

Living with FSHD: A Personal Journey of Strength, Hope, and Family
Meet Leona Luke: a 46-year-old mum from the Gold Coast. While her life seems like it’s all about family and fulfilling her everyday roles, Leona’s journey has been anything but typical. Leona was diagnosed with Facioscapulohumeral Muscular Dystrophy (FSHD), a progressive genetic disorder that weakens muscles over time.

Emma’s Story – A Life Transformed by Research
After 12 months of intensive treatment for breast cancer, Emma was left to navigate life after cancer on her own. She had survived, but she didn’t have the tools or support to truly thrive. That’s where research made the difference.

More Than a Diet: Jenny’s Path to Coeliac Awareness
Jenny, a coeliac disease clinical trial participant shares her story. Jenny’s 18 year journey with coeliac disease has led her to become a strong advocate for research and clinical trials.

Pulmonary Arterial Hypertension – Rosemary’s Story
Pulmonary Arterial Hypertension is a serious condition characterised by high blood pressure in the blood vessels of the lungs. This elevated lung pressure causes patients to feel short of breath and, if left untreated, can ultimately lead to right heart failure and death. Rosemary shares her story living with this condition.

From diagnosis to clinical trials: Aidan’s Coeliac Disease journey
An estimated 1 in 70 Australians have coeliac disease, with more than 80 per cent of all Australian coeliac disease sufferers remain undiagnosed. Aidan, a coeliac disease clinical trial participant at Wesley Research Institute, was part of that statistic remaining undiagnosed for a lengthy period of time despite experiencing symptoms.

Eddie’s Story
Our Clinical Trials Centre has been helping people live longer and have a better quality of life since 1994, by offering new and emerging treatment options to patients with various illnesses and diseases. Eddie, who recently participated in one of WRI's innovative cardiac clinical trials, understands this first-hand.

Jillian’s Story
This was my first experience at being involved in any sort of research. If I get the opportunity again, I would definitely put my hand up after the wonderful experience I had with your team. Thank you so much to Emma and all your team for making me feel so welcome. Jillian Meet Jillian, retired […]

Lung Cancer Survivor Michel Itel an advocate for Spatial Mapping of Digital Pathology
As a patient with a specific EGFR positive mutation, Michel benefited from targeted therapy, an approach that the new Queensland Spatial Biology Centre (QSBC) aims to enhance for future patients.

Amanda’s Story
Flashback to the middle of 2019, it was just like any other normal day at work for Amanda, until she noticed a lump in her groin.

Keeping it fun in the kitchen for a young family
Be a creative baker, have fun experimenting with new ingredients and be prepared to take your own food when you go out.

Coeliac Disease: This is Lou’s Story
Lou shares her journey with coeliac disease and how dietary changes helped her regain energy and wellbeing.

Kristina’s Story
I didn’t get diagnosed until I was 30, after I’d had no period for 2 years. I experienced a lot of other health issues too, and really wish I was diagnosed earlier.

Melanie’s Story: Tourette Syndrome Awareness Week
Melanie, whose name has been changed to protect her privacy, is a young woman from China, who first came to Australia in 2016 to experience life studying abroad.

You have given Chris hope…
Chris Wright was the first participant to commence treatment on a medicinal cannabis clinical trial to treat his neurological disorder Tourette’s syndrome