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Advocates Event: Making a Big Impact in Rare Disease Research

Did you know that rare diseases are actually common? There are about 8000 rare diseases affecting an estimated 1.5 million Australians.

At this special Advocates Event, Associate Professor Robert Henderson and Professor David Coman will detail some research they are working on to give people with rare diseases better treatment options and offer a better quality of life.

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News

A new lease on life for Kym

In 2017 Kym’s life was full and happy. But what Kym didn’t know was that a rare genetic disease, Porphyria, was now waking within her body. A clinical trial for a new therapy is providing hope that life could return to normal.

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Wesley Medical Research

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